A long yap about my autism diagnosis
I was diagnosed with autism! I know, no surprise, right? I draw boobery goblins for a living, ffs. But there was never a point where anyone told me hey, you should go and get assessed, it might help you. I don’t say this to blame anyone, it’s more an acknowledgement that I went 27 years not knowing this part of myself and masking it well enough that nobody saw it as an issue.
I was diagnosed with anxiety and depression in my mid teens, but I’d struggled with my mental health for years up until that point. I can’t help but wonder: Would I have gone through all the shit I did if I’d been diagnosed earlier? If I’d gotten the right support at school? Don’t get me wrong, I wasn’t without help. After being diagnosed with depression my family was very supportive, I got therapy, and had a counsellor at school. But what if the depression wasn’t just a symptom of various events I’d been through, but that profound feeling of otherness I’ve always felt? There have been so many events that, looking back with a new lens, have been completely recontextualised.
I’ve had a lot of questions since my autism diagnosis, a lot of which I’ll never be able to answer. When I first got my diagnosis, I was told there can be what feels like a period of grief, and I’ve felt that more than I could have anticipated. Grief for the kid who didn’t understand why they felt so different, grief for the person I thought I was, and grief for the person I could have been. One of the most difficult questions that’s come out of this has been: Who even am I? It might be hard for some people to understand, but if there are any other late-diagnosed people out there, you might be able to relate.
Aside from grief, there’s been anger. Anger that there is no “cure”. The things that overstimulate me aren’t just something I’ll get used to one day. Walking down the street will always feel like a bombardment on the senses. No matter how much I love my friends and family, I will always find interacting with people exhausting far too soon. The lingering desire I’ve had to piss off to another world will probably always be there, because sometimes I feel I ain’t right for this one.
Apart from the negative feelings I’ve had about it, though, it’s actually been one of the most positive discoveries of my life. The fact everything has been recontextualised has made so many things make more sense. Negative traits I thought were because I was broken, lazy, or socially inept, were actually because I didn’t understand myself. What I thought was me being irrational or insane was a result of being overwhelmed, having no idea how to recognise the warning signals until it was too late, and having a breakdown.
It's funny looking at my OC Tox, who started as an angry characterisation of myself. She's an exaggeration, of course, but I used to have problems with controlling my anger. She drinks because I drank, because alcohol numbed the anxiety and helped me deal with sensory strains. I can look back at all the times I had meltdowns and understand them. Unfortunately for Tox, she will remain undiagnosed. Sorry girlie.
When I started taking TwistingToxic as a business more seriously, I was absolutely driven. People often call autism a superpower, and a lot of the time, it certainly can be. There was a long time where I was posting a piece of art every single day, gaining lots of traction, interacting with people regularly. But there hit a point in the last couple years where I lost some of that motivation. I thought it was demotivation from people stealing my art, or AI changing the art world, or being shadowbanned so hard only a handful of the audience I'd worked to build ever saw my art. And it probably was all of those things, but was also probably a long overdue burnout after working so hard for so long without a suitable structure. The tism superpower doesn’t come without costs.
Even before the diagnosis I'd been trying to get more strict with myself about running this as a proper business, since I had no boundary between my work and my personal life. Planning my weeks and days ahead of time, setting an end of work day, not responding to DMs outside of working hours. It has definitely been helping.
I'm learning more about myself all the time, things I hadn't let myself tune into before. Turns out I work best at certain times of the day. I gotta pre-plan my lunch or I’ll have a meltdown because I didn’t recognise my hunger signals until they’re crippling. Sometimes I need to lie down on the floor for a while (though I still haven't worked out what emotion that's about). Point being, I'm still working out ways to fine tune my days to be optimal for my needs.
There's a common saying that the diagnosis changes nothing, but at the same time, it changes everything. I'm still me. I still have the same talents and the same struggles. What's different now is my perception of myself, finally knowing why I struggled, and knowing what tactics I can use to make life easier going forward.
I've been debating back and forth for a while about talking about my diagnosis. I didn't know if it was the right choice to make public. But then I figured, hey, most of my audience are probably like me anyway, and I want you to understand why posts haven’t been as frequent as they were in the past. I really love what I do, but it turns out I have more learning to do to make it work for me.
If you’ve read this far, thank you for listening to me ramble. I really do appreciate all of the support, and I love that you all allow my lil’ autistic ass to live out my dream job. If you’re late diagnosed like me, you’re not alone. It is confusing and weird and liberating beyond belief, and any feelings you have about it are valid. Lots of love, fellas.
Comments (13)
I could never put my experiences into words as good as you did in this post and it perfectly fits me as well which is insane but kinda dope as well. I was diagnosed when I was 25 a year ago and at first I felt releaved that I finally had an explanation for all the things that are "weird" about me and all I could do was cry... to this day I dont know if they were tears of happyness or sadness or something else but it felt so rejuvenating. Yes, there were times when I got depressed afterwards thinking "if only I knew sooner" and "why do I have to be different?" but overall I am glad I got my diagnosis and I wouldnt want it any other way. It helped me realise that because of my autistic brain there are things that cause me issues and now I know what to avoid and what to work on and that was tremendous help. Yes autism and being late diagnosed has set me back one could say (tho I dont really feel that way).. I was unemployed for a very long time and I dropped out of uni. But now I am slowly picking up my life again and Id say it is thanks to the diagnosis. I almost feel like a kid again the way I was and who I truly am because I dont try to mask so hard anymore. I relate to you on an incredible level. And I am happy to have read trough your post in full. You chose right to share this with us... with me. Welcome to autosm town 💓
Mid thirties diagnosed ADHD here and yah, that grief and anger are both very real. Even some unfair and fair resentment towards caregivers and social structures. I hope this gives you the tools to get on a better path. The biggest thing is to give your current self the grace you should have had as a kid when you would have wanted to do all that skill building. Forgiving yourself for being bad at life because you were trying to cram a square peg into a round hole for decades.
Thank you for sharing, TT! Been a big fan for years, gotten a lot of friends into your work too since it touches on our mutual appreciation for horny and hilarious perfectly lol It brings me immense joy to hear you're not just understanding yourself better after your diagnosis, but acting on that understanding to improve your life! My wife is autistic and it brought her a lot of comfort to find out that a favorite artist of hers has also been on a similar journey, even the whole "laying on the floor sometimes and not understanding what emotion that comes from" thing. You make a lot of people very happy with not just your work, but with the glimpses of the person behind the artsona. Thank you for all of it, can't wait to be a supporter for many more years!
this is exactly why i wanted to share my thoughts - i'm so happy that it brought your wife some comfort to hear the similarities in our lives! learning that i'm not alone in all the strangeness i feel has been one of my favourite things to come out of this. we're all just lil freaks at the end of the day. thanks so much for the kind words and support <3
I've never been diagnosed, but I can empathize with that sense of frustration and struggle spending time recontextualize your past. I'm glad to see you're still doing awesome working with what you've got on your plate, and I hope to keep seeing the awesome stuff you make :D
Finding your way through the world with handicaps feels like the most daunting challenge, but the fact you are still here and reaching out speaks volumes. You are definitely not alone in your struggles and many of us are here trudging through that invisible mud with you, ready to pull you back up should you need us. I was definitely late in the game of finding out my adhd, sometimes I feel like its grown worse as Ive gotten older. But anyway, you got a community here, a community of degenerate weirdos but hey, weirdos gotta stick together ❤️ keep shining on you beautiful spitfire
thank you for the kindness! i hope you can continue finding your way in the world, too. honestly, there's no community in the world i'd rather be a part of <3
As someone who was diagnosed at the start of highschool, nothing really changed.
Autism Gang
Finding my way into a space that helped me recognise that I was neurodivergent was eye-opening to me. I'd never had any cause behind the bouts of anxiety, depression or alienation I felt being around people, why I felt... not fitting. I haven't been officially diagnosed, I'm not sure when or even if I will be someday, but I know my brain wiring isn't quite the standard template. For what it is worth, I'm happy for the answers you found. The grief will ease, the pain can pass, but now you know yourself just a little bit more. Being here, interacting with you, and being part of your amazing community has been a joy, Tox, and I appreciate you!
i do wonder, if i'd never gotten into drawing goblins and meeting more neurodivergent people, would i have uncovered the autism?! it's been such an awesome space to come into and find myself, too. thanks for coming on this journey with me teller <3
Honestly, I never realized I was autistic until I was 24-25. From There, it just started giving things names and giving ways to attack and deal with things that were these nameless horrors foe years. You're not alone. Good luck dude!
exactly! it hasn't changed that the feelings exist, but now i know how to explain them and am learning methods to cope. thanks so much!
